24 November 2008

1315grams today and climbing. Whe have had a small set back with Gracyn going back on the mainline c-pap due to the ammount of de-stats she was having after feeding.Because she has no problem putting on the weight and growing they have reduced her food intake to 17ml. The doctors think that the food (EBM) is sitting in her tummy and causing pressure on her digaphram makeing her de-stat immediatly after food. The more d-stats she has the weaker she gets so a little bit of give and take and trial and error until she ready. They will try again next week with the wellington c-pap and see how she goes.
As we know we will have these up,s and down,s we just have to ride the rollercoaster until we get to the end.
Yesterday we went to the Short Straw Cafe for a lunch with some good friends of ours, a great place to take the kids as it is completly child friendly.When we got there i bumped into a friend of mine Daniel who was celebrating his son Taylor.s 2nd birthday. I told him about our wee Gracyn and the situation we were in, Daniel then told me that Taylor was a premature baby born a 23 weeks and 550grms and also 4 of the other chldren at the party were also premature babies. It,s funny how the circle of life goes, you buy a red car then all of a sudden every one has got a red car, you have a prem baby then every one has had one. It seems that everyone we bump into has had a prem baby or knows about one. But thats good as it justs shows us there is light at the end of he tunnel and it,s geting brighter by the day.
Angela had a good cuddle today and done her cares, she enjoys this and so do i, eventhough Gracyn is ignoring her father,s requests and saving all the big Jobbies for me.
more tomorrow

Steve, Ange,Tegan,Gracyn