What a weekend , Gracyn has some good days and some bad days.She is back on oxygen and was tube fed up until last nite. We were just about off the oxygen all together then she went and had a coughing fit which put here back on.
i spent Saturday nite in the hospital with Gracyn, what a long nite. She is on 2 hourly feeds 55 ml at a time.They are doing this because a larger volume may put presure on her digaphram givng here breathing difficulties so you just get to sleep then its time to get up again. Gracyn was well behaved for her dad takeing her bottle and going straight back to sleep. The doctors have given her Redipred a steroid that may help, Hopefully we will see some change soon.
Today i managed to get a smile and a giggle from Gracyn something that i have,nt seen since last thursday, it made my day.Maybe this is a sign of improvement i hope.This doctors won,t let her out until she is off the oxygen for at least 12 hours so it looks like we may be in for a longer stay than we anticpated.Angela is there tonite and probably tomorrow nite, i may take some leave and do a shift during the week to give Angela a break.Wee will just have too see what happens.
Steve,Angela,Tegan,Gracyn
Sunday, August 30, 2009
Friday, August 28, 2009
29 th August 2009
Back in Hospital
Gracyn has been admitted back into the Hutt Hospital,s childrens ward. She just kept getting worse so Angela spent a nite up with her last nite and it looks like we may be thare all weekend.
She is back on oxygen and due to her not feeding properly she is dehydrated.They have put a feeding tube back in so she can get fed that way.It seems we have gone a few steps backward which is rather depressing as Gracyn was doing so well.
Hopefully we should see some improvement today. I,ll take Tegan to schoool today and take Angela up a very strong coffee before i go to work.
Steve,Ange,Tegan,Gracyn
Gracyn has been admitted back into the Hutt Hospital,s childrens ward. She just kept getting worse so Angela spent a nite up with her last nite and it looks like we may be thare all weekend.
She is back on oxygen and due to her not feeding properly she is dehydrated.They have put a feeding tube back in so she can get fed that way.It seems we have gone a few steps backward which is rather depressing as Gracyn was doing so well.
Hopefully we should see some improvement today. I,ll take Tegan to schoool today and take Angela up a very strong coffee before i go to work.
Steve,Ange,Tegan,Gracyn
Wednesday, August 26, 2009
26th August 2009
Here we go again!!
Gracyn has a cough again which has put us all on edge yet again. It seems to be every 4-6 weeks this cough keeps coming back. I have told her that smoking is bad for her!! and she should give it up.! . We had a rough nite last nite with Angela up several times to Gracyn all going well both of them will get some sleep today.
i suppose we will just have to wait it out and see how she goes.Again!!!
More later
Steve,Ange,Tegan,Gracyn
Gracyn has a cough again which has put us all on edge yet again. It seems to be every 4-6 weeks this cough keeps coming back. I have told her that smoking is bad for her!! and she should give it up.! . We had a rough nite last nite with Angela up several times to Gracyn all going well both of them will get some sleep today.
i suppose we will just have to wait it out and see how she goes.Again!!!
More later
Steve,Ange,Tegan,Gracyn
Monday, August 24, 2009
24 August 2009
Hi ALL
As Promised Gracyn weighs in at 7.63 kg that is 15lb5, not bad for my wee girl.She is a real rolly-ploy girl now all over the place and yelling out dad,dad,dad when she gets stuck.
Tegan and Gracyn had a sleep over at Nanna,s house in the weekend with both of them being well behaved. Angela and i managed to go out together to a 40th birthday party which meant that Sunday was a bit slow for us both, but we had a great time together.
More soon
Steve Ange, Tegan, Gracyn
As Promised Gracyn weighs in at 7.63 kg that is 15lb5, not bad for my wee girl.She is a real rolly-ploy girl now all over the place and yelling out dad,dad,dad when she gets stuck.
Tegan and Gracyn had a sleep over at Nanna,s house in the weekend with both of them being well behaved. Angela and i managed to go out together to a 40th birthday party which meant that Sunday was a bit slow for us both, but we had a great time together.
More soon
Steve Ange, Tegan, Gracyn
Wednesday, August 19, 2009
18TH August 2009
Hi All
Gracyn is due for another weigh in tomorrow as the last one she did,nt put on a lot and was not worth mentioning. We put it down to the previous 6 weeks of her being unwell.
At the moment she is fine, fit and healthy nad as you can see by the pictures she enjoys the ocassional girl guide biscuit. YumYum!! and Messy!!
Gracyn is a lot of fun at the moment and has become extremly vocal specially at about 6.30am. We put her down in front of the Tv and she,s off wriggling about and babbling away to herself. It so cute!
i promise i,ll post again when i have an official weight.
Steve,Ange,Tegan,Gracyn
Gracyn is due for another weigh in tomorrow as the last one she did,nt put on a lot and was not worth mentioning. We put it down to the previous 6 weeks of her being unwell.
At the moment she is fine, fit and healthy nad as you can see by the pictures she enjoys the ocassional girl guide biscuit. YumYum!! and Messy!!
Gracyn is a lot of fun at the moment and has become extremly vocal specially at about 6.30am. We put her down in front of the Tv and she,s off wriggling about and babbling away to herself. It so cute!
i promise i,ll post again when i have an official weight.
Steve,Ange,Tegan,Gracyn
Tuesday, August 4, 2009
4 August 2009
Gracyn is a lot better now than she was a week ago. She is back to her normal happy self and has lost her smokers cough!!. Long may it last i hope.
She has an appointment at plunket this week so we will know exactly ho big she is this week.
Angela went away last weekend for a girlie time leaving me in charge.So while she was away Tegan and i hung out in our underpants, smoked and drunk while Gracyn done all the house work, naaa not realy. Gracyn was an Angel and Tegan and i managed to get to the pool for a couple of hours while Nana kindly looked after Gracyn. We had a ball at the pool, Tegan is getting so confident in the water and just loves it.
Hopefully Gracyn will stay well for a while making it easier on us all, i will post again after the big weigh in at plunket.
Steve,Ange,Tegan,Gracym
She has an appointment at plunket this week so we will know exactly ho big she is this week.
Angela went away last weekend for a girlie time leaving me in charge.So while she was away Tegan and i hung out in our underpants, smoked and drunk while Gracyn done all the house work, naaa not realy. Gracyn was an Angel and Tegan and i managed to get to the pool for a couple of hours while Nana kindly looked after Gracyn. We had a ball at the pool, Tegan is getting so confident in the water and just loves it.
Hopefully Gracyn will stay well for a while making it easier on us all, i will post again after the big weigh in at plunket.
Steve,Ange,Tegan,Gracym
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